Therefore, preventive approaches offering social-emotional, family-centered support are warranted for this vulnerable population. They may suffer from family functioning issues, psychological distress, depressive symptoms, and anxiety for months or even years after discharge, sometimes until their children reach school age. After hospital discharge, they often feel abandoned to deal with the further emotional, physical, and financial challenges of caring for their extremely prematurely born infant. Parents of EP infants are confronted with a tremendous shift in their expectations as to the parental role and can experience feelings of helplessness, shame, guilt, and anxiety, which may result in acute stress or posttraumatic stress disorders. Particularly, parents of extremely preterm infants face concerns about their infant’s survival and suffering and may be traumatized by the appearance of their infant with the innumerable tubes and wires in the unfamiliar, high-tech environment of the neonatal intensive care unit (NICU). The birth of a preterm infant is usually a stressful and traumatizing event for the parents. Further research may help to identify and implement potentially modifiable factors for improving health care in this vulnerable group through early family-integrating, resource-based approaches such as CMT. CMT may empower positive transformation in the parents through individualized early nurturing musical interactions, capacity building, and positive reinforcement. The findings elucidate the positive and formative impact of CMT on both infants and parents in the stressful NICU setting and beyond. We used an inductive–deductive thematic analysis to identify three main themes, each with three sub-themes: (1) the positive impact of CMT on the infants, the parents, and bonding (2) the attitude toward CMT, from being open-minded to recommending it as complementary therapy and (3) the experience of overall healthy infant development despite unique developmental delay issues. Semi-structured interviews were carried out when the infants reached school age. A qualitative design was used to examine the perspective of six families from various backgrounds. We aimed: (1) to explore parental perspectives on the use of CMT with EP infants in the neonatal hospitalization period and (2) to examine the possible longitudinal influence of CMT. Approaches to social-emotional support such as family-integrating Creative Music Therapy (CMT) are warranted. Developmental problems in extremely preterm (EP) infants and the associated longitudinal burden for their families are major health issues worldwide.
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